Resource Center
These resources may help you learn more about cystic fibrosis (CF).
Learn More About CF With Eugene
Learn More About CF With Eugene
It's important to get children familiar with CF from an early age. This educational series offers a fun and engaging way to learn all about CF.
Eugene’s Big Book of CF Words
Help your child understand words they hear at the CF Center or in other resources on CF Source.
Visiting the CF Care Center
Watch as Billie learns what happens at her CF Care Center.
Meeting the CF Care Team
Tag along with Billie and Eugene as they meet a few members of the CF care team.
Causes and Impact of CF
Join Eugene as he explains what causes CF and how it affects the body.
Progression in the Lungs
Watch as Eugene explains how CF affects the lungs.
Impact on the Digestive System
Find out some of the ways CF affects the pancreas and liver with Eugene.
Some Impacts in the Bones, Kidneys, and Hearing
Eugene explains how CF progresses in these other parts of the body.
CF Educational Videos
Watch these videos to get a better understanding of CF, its impact on the body, and how it progresses in certain organs.
Watch these videos to get a better understanding of CF, its impact on the body, and how it progresses in certain organs.
Watch these videos to get a better understanding of CF, its impact on the body, and how it progresses in certain organs.
CF Gene Mutation
CFTR gene mutations and defective CFTR proteins
CFTR gene mutations and defective CFTR proteins
Mutations that affect the function of CFTR proteins
Mutations that affect the function of CFTR proteins
Mutations that affect the quantity of CFTR proteins
Mutations that affect the quantity of CFTR proteins
Impact of CF
How cystic fibrosis (CF) affects the lungs
How cystic fibrosis (CF) affects the lungs
How cystic fibrosis (CF) affects the digestive system
How cystic fibrosis (CF) affects the digestive system
How cystic fibrosis (CF) affects the bones, liver, and sinuses
How cystic fibrosis (CF) affects the bones, liver, and sinuses
CF Progression
Cystic fibrosis (CF) progression in the lungs
Cystic fibrosis (CF) progression in the lungs
Cystic fibrosis (CF) progression in the digestive system
Cystic fibrosis (CF) progression in the digestive system
Downloadable Guides
Customizable Conversation Guide
Use this tool to get the most out of your CF Care Center visits.
Understanding Cystic Fibrosis: For Teachers of Students With Cystic Fibrosis (CF)
For teachers of students with CF.
CF & Progression Guide
A comprehensive guide to CF, including information on causes, impacts, and care.
CF and COVID-19
Tips and guidance for managing your condition during the pandemic.
Cystic Fibrosis Foundation
Mayo Clinic
Other Useful Resources
Other Useful Resources
Other Useful Resources
Boomer Esiason Foundation
www.esiason.org
Clinical Trials
www.clinicaltrials.gov
Cystic Fibrosis Foundation
www.cff.org
Cystic Fibrosis Research Institute (CFRI)
www.cfri.org
CFF YouTube Channel
www.youtube.com/user/CysticFibrosisUSA
If someone has a mutation in 1 of their CFTR genes, it means they’ll have CF.
Here’s the fact: In order for someone to have CF, they must have a mutation in both of their CFTR genes. Learn More >
If both parents are carriers of a CF-causing mutation, there is a 100% chance that their child will have CF.
Here’s the fact: When both parents are carriers of a disease-causing CFTR gene mutation, each of their children has a 25% chance of inheriting CF. Learn More >
Pulmonary exacerbations may require treatment with antibiotics (by mouth, inhaled, or intravenous [IV]).
Pulmonary exacerbations occur when symptoms and/or lung function worsen. Pulmonary exacerbations may require treatment with antibiotics (by mouth, inhaled, or intravenous [IV]) and/or a hospital stay. Learn More >
CF is only a disease of the lungs.
CF only affects the male reproductive system.
Having high lung function means that CF is not progressing.
Both CFRD and cirrhosis are serious complications of CF.
Scarring in the pancreas and the liver, caused by thick digestive fluids over time, can lead to serious complications such as CFRD and cirrhosis, respectively. Learn More >
Some effects of CF may have no symptoms.
Many effects of CF are silent at first. For example, lung damage may be occurring before it can be detected by some tests. Learn More >
Your CF Care Center will teach you how to perform airway clearance techniques after your child turns 1.
Here’s the fact: Your care team will help you perform airway clearance techniques as soon as a week after your child’s diagnosis. Learn More >
Some people with CF will develop hearing loss over time.
Hearing loss is common in people with CF who have been exposed to certain medications for an extended period of time. Learn More >
Scarring causes CF to progress in the affected organs.
Pancreatitis is common in people with CF.
Here’s the fact: Pancreatitis only occurs in the small group of people with CF who are pancreatic sufficient. Learn More >
If you aren’t experiencing any symptoms of CF, your CF is not progressing.
Here's the fact: Even if you aren’t experiencing symptoms like pulmonary exacerbations or issues with digestion, CF continues to affect your lungs or your digestive system.
The only pancreas function CF affects is helping to digest food.
Here's the fact: CF may make it difficult for the pancreas to produce insulin, an enzyme that helps the body break down sugar. CF may also make it difficult for the body to use the insulin it does produce.
