Resource Center

These resources may help you learn more about cystic fibrosis (CF).

 

Learning About CF With Eugene
Educational Videos
Downloadable Guides
Fact or Fiction

Learn More About CF With Eugene

It's important to get children familiar with CF from an early age. This educational series offers a fun and engaging way to learn all about CF.

New | Interactive book
Eugene’s Big Book of CF Words

Help your child understand words they hear at the CF Center or in other resources on CF Source.

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Visiting the CF Care Center

Watch as Billie learns what happens at her CF Care Center.

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NEW | VIDEO
Meeting the CF Care Team

Tag along with Billie and Eugene as they meet a few members of the CF care team.

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Causes and Impact of CF

Join Eugene as he explains what causes CF and how it affects the body.

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Progression in the Lungs

Watch as Eugene explains how CF affects the lungs.

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Impact on the Digestive System

Find out some of the ways CF affects the pancreas and liver with Eugene.

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Some Impacts in the Bones, Kidneys, and Hearing

Eugene explains how CF progresses in these other parts of the body.

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Downloadable Guides

 

Customizable Conversation Guide

Use this tool to get the most out of your CF Care Center visits.

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Understanding Cystic Fibrosis: For Teachers of Students With Cystic Fibrosis (CF)

For teachers of students with CF.

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CF & Progression Guide

A comprehensive guide to CF, including information on causes, impacts, and care.

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CF and COVID-19

Tips and guidance for managing your condition during the pandemic.

Cystic Fibrosis Foundation
CF and Coronavirus (COVID-19)
Community Questions and Answers

Mayo Clinic
Cystic Fibrosis and COVID-19

Other Useful Resources

Boomer Esiason Foundation
www.esiason.org

Clinical Trials
www.clinicaltrials.gov

Cystic Fibrosis Foundation
www.cff.org

Cystic Fibrosis Research Institute (CFRI)
www.cfri.org

CFF YouTube Channel
www.youtube.com/user/CysticFibrosisUSA

How much do you know about CF progression?

Put your knowledge to the test with CF Fact or Fiction.

1
If someone has a mutation in 1 of their CFTR genes, it means they’ll have CF.
Fact
or
Fiction
Fiction

Here’s the fact: In order for someone to have CF, they must have a mutation in both of their CFTR genes. Learn More >

2
If both parents are carriers of a CF-causing mutation, there is a 100% chance that their child will have CF.
Fact
or
Fiction
Fiction

Here’s the fact: When both parents are carriers of a disease-causing CFTR gene mutation, each of their children has a 25% chance of inheriting CF.  Learn More >

3
Pulmonary exacerbations may require treatment with antibiotics (by mouth, inhaled, or intravenous [IV]).
Fact
or
Fiction
fact
Fact

Pulmonary exacerbations occur when symptoms and/or lung function worsen. Pulmonary exacerbations may require treatment with antibiotics (by mouth, inhaled, or intravenous [IV]) and/or a hospital stay. Learn More >

4
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CF is only a disease of the lungs.
Fact
or
Fiction
Fiction

Here's the fact: CF affects many different systems of the body. Learn More >

5
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CF only affects the male reproductive system.
Fact
or
Fiction
Fiction

Here’s the fact: CF often affects the fertility of both women and men. Learn More >

6
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Having high lung function means that CF is not progressing.
Fact
or
Fiction
Fiction

Here’s the fact: Lung damage may be present even when lung function is high.  Learn More >

7
Both CFRD and cirrhosis are serious complications of CF.
Fact
or
Fiction
fact
Fact

Scarring in the pancreas and the liver, caused by thick digestive fluids over time, can lead to serious complications such as CFRD and cirrhosis, respectively. Learn More>

8
Some effects of CF may have no symptoms.
Fact
or
Fiction
fact
Fact

Many effects of CF are silent at first. For example, lung damage may be occurring before it can be detected by some tests.  Learn More >

9
Your CF Care Center will teach you how to perform airway clearance techniques after your child turns 1.
Fact
or
Fiction
Fiction

Here’s the fact: Your care team will help you perform airway clearance techniques as soon as a week after your child’s diagnosis.  Learn More >

10
Some people with CF will develop hearing loss over time.
Fact
or
Fiction
fact
Fact

Hearing loss is common in people with CF who have been exposed to certain medications for an extended period of time.  Learn More >

11
body
Scarring causes CF to progress in the affected organs.
Fact
or
Fiction
fact
Fact

Scarring in organs causes them to lose function over time. Learn more > 

12
Pancreatitis is common in people with CF.
Fact
or
Fiction
Fiction

Here’s the fact: Pancreatitis only occurs in the small group of people with CF who are pancreatic sufficient.  Learn More >

13
If you aren’t experiencing any symptoms of CF, your CF is not progressing.
Fact
or
Fiction
Fiction

Here's the fact: Even if you aren’t experiencing symptoms like pulmonary exacerbations or issues with digestion, CF continues to affect your lungs or your digestive system. 

14
The only pancreas function CF affects is helping to digest food.
Fact
or
Fiction
Fiction

Here's the fact: CF may make it difficult for the pancreas to produce insulin, an enzyme that helps the body break down sugar. CF may also make it difficult for the body to use the insulin it does produce. 

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