Resource Center

These resources may help you learn more about CF.

Learning About CF With Eugene
CF Educational Videos
Downloadable Resources
CF Fact or Fiction
Other Useful Resources

CF Behind the Scenes With Eugene




It's important to get children familiar with CF from an early age. This educational series offers a fun and engaging way to learn all about CF.

NEW VIDEO
Learn about the causes and impacts of CF
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Learn about progression in the lungs
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Learn about progression in the digestive system
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Downloadable Resources

CF at School

For Teachers of Students With CF

DOWNLOAD THE GUIDE
CF & Progression Guide

CF & Progression: Understanding the Underlying Impact

DOWNLOAD THE GUIDE

La fibrosis quística (FQ) y su Progresión: Comprensión del Impacto Subyacente

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How much do you know about CF progression?

Put your knowledge to the test with CF Fact or Fiction.

1
If someone has a mutation in 1 of their CFTR genes, it means they’ll have CF.
Fact
or
Fiction
Fiction

Here’s the fact: In order for someone to have CF, they must have a mutation in both of their CFTR genes. Learn More >

2
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If both parents are carriers of a CF-causing mutation, there is a 100% chance that their child will have CF.
Fact
or
Fiction
Fiction

Here’s the fact: When both parents are carriers of a disease-causing CFTR gene mutation, each of their children has a 25% chance of inheriting CF.  Learn More >

3
Pulmonary exacerbations may require treatment with antibiotics (by mouth, inhaled, or intravenous [IV]).
Fact
or
Fiction
fact
Fact

Pulmonary exacerbations occur when symptoms and/or lung function worsen. Pulmonary exacerbations may require treatment with antibiotics (by mouth, inhaled, or intravenous [IV]) and/or a hospital stay. Learn More >

4
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CF is only a disease of the lungs.
Fact
or
Fiction
Fiction

Here's the fact: CF affects many different systems of the body. Learn More >

5
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CF only affects the male reproductive system.
Fact
or
Fiction
Fiction

Here’s the fact: CF often affects the fertility of both women and men. Learn More >

6
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Having high lung function means that CF is not progressing.
Fact
or
Fiction
Fiction

Here’s the fact: Lung damage may be present even when lung function is high.  Learn More >

7
Both CFRD and cirrhosis are serious complications of CF.
Fact
or
Fiction
fact
Fact

Scarring in the pancreas and the liver, caused by thick digestive fluids over time, can lead to serious complications such as CFRD and cirrhosis, respectively. Learn More>

8
Some effects of CF may have no symptoms.
Fact
or
Fiction
fact
Fact

Many effects of CF are silent at first. For example, lung damage may be occurring before it can be detected by some tests.  Learn More >

9
Your CF Care Center will teach you how to perform airway clearance techniques after your child turns 1.
Fact
or
Fiction
Fiction

Here’s the fact: Your care team will help you perform airway clearance techniques as soon as a week after your child’s diagnosis.  Learn More >

10
Some people with CF will develop hearing loss over time.
Fact
or
Fiction
fact
Fact

Hearing loss is common in people with CF who have been exposed to certain medications for an extended period of time.  Learn More >

11
body
Scarring causes CF to progress in the affected organs.
Fact
or
Fiction
fact
Fact

Scarring in organs causes them to lose function over time. Learn more > 

12
Pancreatitis is common in people with CF.
Fact
or
Fiction
Fiction

Here’s the fact: Pancreatitis only occurs in the small group of people with CF who are pancreatic sufficient.  Learn More >

Other Useful Resources

All in for CF

www.vrtxallincf.com

Boomer Esiason Foundation

www.esiason.org

Clinical Trials

www.clinicaltrials.gov

Cystic Fibrosis Foundation

www.cff.org

Cystic Fibrosis Research Inc.

www.cfri.org

Johns Hopkins Medicine

http://www.hopkinsmedicine.org/healthlibrary/conditions/adult/respiratory_disorders/cystic_fibrosis_85,P01306/

Mayo Clinic

http://www.mayoclinic.org/diseases-conditions/cystic-fibrosis/basics/definition/con-20013731

National Jewish Health

http://www.nationaljewish.org/healthinfo/conditions/cysticfibrosis/

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